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NDPH: CSF Venous Fistula as Cause?

Chronic Pain | Last Active: May 22, 2023 | Replies (12)
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@l1ll1anfaye

I have a diagnosis od NDPH. I have had a moderate to severe headache every day (all day long) for the past 9 months. I am having IV Ketamine treatment next day (4 infusions over 5 days). Has anyone had this treatment and was it helpful? Thanks for any help.

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Replies to "I have a diagnosis od NDPH. I have had a moderate to severe headache every day..."
mikaylar | @mikaylar | May 21, 2023

Omg I have had NDPH for 3 yrs/9 mos, every day/all day. I had 5 spinal blood patches, nerve blocks, everything imaginable. Used Ketamine nose spray. I have a friend who had the Ketamine IVs for 5 days. You will have hallucinations and some pretty noticeable side effects. I am 76 so I refused it. My doctor is putting me on off-label lithium next. Where are you treating for this?

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