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@nicolaidk

My wife was diagnosed Sept 2022 with EGFR with exon 19 mutation and has been on tagrisso 80 mg since Sept 2022. Besides splitting nails, dry skin and occasional diarrhea, she is doing ok. The cancer has been reduced in size in her brain and lungs (including tumours) and gone from her lymph’s, liver, femur and lower back spine. She has checkups (blood work, and scans) every quarter. She also experienced blood clots in December after being on Tagrisso for 3 months so now doing daily injections of blood thinning medication. She is taking collagen powder which really helped against dry skin.

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Replies to "My wife was diagnosed Sept 2022 with EGFR with exon 19 mutation and has been on..."

Hi @nicolaidk, I'm glad to hear that your wife seems to be responding to, and tolerating, the Tagrisso. These inhibitor meds are life extending, and we're fortunate to have them available to us. It sounds like the two of you have been through so much in the past 6 months. I'm so glad that she's still with you, give her a big hug! The diagnosis is usually so unexpected, and emotional weight of the diagnosis is a heavy one for you both. Be sure to take care of your own mental health during this time too. The doctors are good at keeping us alive, but we need to work to keep ourselves mentally heathy too.