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DiscussionArachnoiditis: Looking to talk with others
Spine Health | Last Active: Aug 16 4:15pm | Replies (388)Comment receiving replies
Replies to "Hi, If anyone is still on this message board, I need advice please. I am in..."
I’m so sorry to hear that you are going through this. You have many of the same symptoms that I have been struggling with for many years.
Did the lumbar/sacral part of your mri say anything about Tarlov Cysts? If not, perhaps you can ask your doctor to request a re-read of the MRI to assess for presence of them. Your symptoms sound very similar to those that people experience with this condition. The name Tarlov Cyst is somewhat of a misnomer as the actual condition is ballooning out of the nerve tissue within a nerve root, usually at the sacral level but sometimes at other levels of your spine.
Another idea is to ask your doctor about prudential nerve entrapment. This has similar symptoms to yours and to Tarlov Cysts.