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Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Neuroendocrine Tumors (NETs) | Last Active: Feb 26 7:54pm | Replies (77)
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@stevestenberg31

Where is your NET? Could that be partially blocking your GI system? I had a partial, then full blockage resulting in emergency operation to remove my SINET and gallbladder. Now im thinking it was not a side effect of the Lanreotide for me

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Replies to "Where is your NET? Could that be partially blocking your GI system? I had a partial,..."
sophiarose | @sophiarose | May 19, 2023

I have an unknown primary
They think in my small intestines but it isn’t showing on any MRIs or the 2 PET scans
In 2019 I had a liver resection and my gallbladder removed
I was cancer free for 2 1/2 yrs until I was diagnosed with metastasis on my liver
I was feeling great until I started the injections
I did them for 1 year the tumors were still growing and nee ones were appearing
The shots weren’t working the side effects were terrible so I stopped in March and I am finally starting to feel better
I am sure for me it was the injections

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