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(CKD) 2 year clock running out. I’m fading out.

Kidney & Bladder | Last Active: May 21, 2023 | Replies (9)

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Thank you for the instructions. LOL. I hope this is a private message. You are receiving from me and not a post. I need a double kidney transplant, but it is not on the table for me because I am not going to take years off of people in my family‘s life because I got Adele sort of a bad hand if that’s how I’ll phrase it for now. Walls it would do would prolong the inevitable. I might’ve miss worded what I said they want to start me on dialysis but spinning my blood has nothing to do with the fact my kidneys can no longer break down nor pull the nutrients out of the food that I need. I have all three types of kidney stones as I mentioned I’m not sure if when I posted that if people were able to see what I said , I’m sure you know struvite kidney stones are I don’t wanna word this the wrong way but are common to females that are prone to frequent UTIs. It’s a gathering of crystals in your kidneys that group together and form a very, very big stone. My kidneys are riddled with them at any given time. I also have sodium phosphate stones, as well as calcium stones. my first three operations were not performed correctly at the hospital and as an example, I had 14 inch stent put in both of my kidneys and the urologist was off by 2 3/4 of an inch in my left kidney, which ended up causing me to go septic a second time and just from them going in with cameras working diagnosing and I have a lot of scar tissue buildup so now when I have the stones, it’s very very hard to pass them. I am no longer a candidate for the blast as they call it the electronic glass because I’ve had it done throughout my life. I think nine times. I’m not sure but , you’re not allowed to get it that many times I had to go to different hospitals because my main hospital was turning me away because of how many times I’ve had a done I’ve had them removed stolen speak them I’ve had stones I’ve had the electric blast I’ve had the flush I’ve had the vacuum process done about four or five times I lose count now but major surgeries I had five in the last year and a half so my kidneys are functioning around the 70% area and they told me as my kidneys start getting into lower function. That’ll affect the other organs in a domino effect I was in the hospital for over a week and during New Year’s and that was with pancreatitis so it’s the trickle down effect mixes my liver in the lungs than the heart and I’m trying to do everything I can do no more for my family rather than me not that I don’t want to live. It’s just sad to pay that I’ll be there every day is close to unbearable and with the whole opioid crisis and everything they no longer on Long Island. I don’t know where you’re from. I’m sorry, but on Long Island they no longer prescribe pain medication , you can go into the hospital with a broken home and a broken leg and they’ll give you Tylenol. They actually told me to start taking Motrin and ibuprofen with which any kidney or urologist doctor without the fundamentals of ibuprofen being a home to your kidneys these are the type of people I’m dealing with enough about me how about you can you tell me a little bit about yourself and what’s going on with you and how do I click on to your profile so I can read and then understand more and that I have to you know make you explain every little thing to me holding my hand lol I’m sorry thank you for getting in touch with me though you guys everybody waking up and seeing all this really really shocked me and maybe baby very very very happy to the point where I’m actually out right now driving and working well last week. I had four days that I couldn’t even walk so you guys were a huge spirit lift is for today especially you thank you and I’m sending you a hug. I hope you have a great day .

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Replies to "Thank you for the instructions. LOL. I hope this is a private message. You are receiving..."

Good afternoon! I just wanted to take a second to say hello and thank you as well privately. It really means a lot to me . As you know I’m new here and I’m doing my best to learn how to navigate the site. Feel free to private message me at anytime. I’m always here to listen. If there is one thing that I have learned throughout all of this as much pain as I am in every day I’ve come to find out through family and friends that people don’t want to hear it. They want to ask you. How are you doing and how you feel but they don’t want you to complain and hear that you’re in pain every day. My question is then why ask me lol. Do you know the situation they know the answer if you don’t want the answer, don’t ask the question. So to let you know, I will always be here for you and everybody else 24 seven to listen but sometimes people just need somebody to listen to them outside of their world , but can understand what they’re going through. No judge just listen and understand so if you ever need to talk talk privately your family is not being receptive of what you have to say. I am here for you. Thank you for your support. Sincerely, Jeffrey.