@krisjb1 Thank you for your reply. I wanted to relay some of my experience with my cervical spine. I had a collapsed C5/C6 disc and a bit of disc movement at other levels, but the discs were all intact. I have another condition called thoracic outlet syndrome which causes tightness in my neck and shoulders and actually compresses nerves and blood vessels under the collar bone. That is worse on one side. I got a lot of muscle spasms because of my spine condition and with the unequal tension side to side, it would rotate the vertebrae in my neck independently and they would stay like that. I ended up with a bad episode of vertigo when I looked up at a bird flying over, and the world started spinning.
I also had the headache like you describe, extreme dizziness, face and ear pain, and it does start at the back of the head. It is stretching the muscles on one side in the rotation and they start complaining. This also causes the vertebral arteries that are in the sides of the cervical vertebrae to become stretched which reduces blood flow to part of the brain. When I looked up, I kinked that already stretched artery which started the vertigo. I worked with my p[physical therapist on this and it was resolved by realigning the vertebrae. I know how to recognize this right when it starts, and correct it after working with my PT. I had spine surgery 6 years ago, so my neck has calmed down. I still have the TOS and do stretches for that, and I can get spasms that start to twist my spine to a much lesser degree. There have not been episodes of vertigo since my spine surgery. I also make sure to stretch the incision scar on my neck periodically that gets tight because it adds to everything.
You could have a CT scan instead of an MRI. A CT is a collection of X-rays made quickly that are are assembled into a 3 dimensional image. That may show the doctor a problem, but not with all the detail of an MRI. I know those machines are loud and you have to wear earplugs. It might be worth asking if ear protection similar to headphones could be used in addition to earplugs. I have tinnitus too, and using earplugs alone was OK for me. Nothing got worse.
Do you think a followup with a spine specialist would be in order? I know how bad that feels when you are so dizzy and nauseated that you can't function or even open your eyes.
Thankyou. Your experience sounds very similar to my own and gives me a ray of hope that I have almost abandoned.
Once I did have a sudden onset of severe vertigo when I turned around to look behind my back in my car. Sounds like the compression you describe. Usually what happens is I wake up with a severe issue that puts me down for days, and sometimes it goes on for months in a less major way (I can walk and do things) day and night. That could happen as a result of a sleep position. these things make sense. I just wonder why it lasts so long-sometimes as much as 10 days.
If I don't do something now I cannot continue on because my life is being sapped away to the point where I am not really functional.
I am seriously considering starting fresh with a new specialist. CT scan sounds like it could help diagnose. It would be helpful if I could get pain meds for the headache. At least that would relieve some of the misery but have not been afforded that by dr. I have allergy to certain anesthesia. Before I was aware of this issue surgery kept me "under" for days so I hope to avoid that at all costs. I need to find a PT that really knows about alignment. So far I don't think I have met one. Do they use the CT scan or can they tell by palpation? If the latter I can go right away.
Thanks again, The info about your experience was an eye opener.