← Return to Looking to connect with people who have non-diabetic neuropathy

Discussion
Comment receiving replies
@artscaping

Good morning. Thanks for filling me in. I have a couple more thoughts....(which is unusual in the morning). I understand the nerve conducting tests. However, the standard for SFN is the skin biopsy which is a 10-second test. However, it has to be sent off for analysis which then enables the neurologist to know what capacity you now have in the nerve cells. Mine was .09 which was quite low.

Good for you doing research on your own. I usually start with the Mayo Clinic site. Then I go to the following sites for additional information:
https://www.foundationforpn.org/
https://neuropathycommons.org/

You may want to ask for some dietary help at this point. I gave up sugar (as best I can) coffee, and alcohol. Instead of a cocktail, I make a fruit/vegetable smoothie with my zero-sugar yogurt and some fruit crystals.

@roslyn, I noticed your expectation that a cure for neuropathy needs to be on someones priority list here in the USA. At this point, there is no cure. Nerve regeneration takes a long time and so far there has been no discovery of a "hurry up" button. What we do by sharing on Connect is find folks dealing with similar symptoms who have found mitigating solutions.

Please share the results of your research. There are thousands of folks who follow and read responses on Connect even though they, themselves, do not post. Your help is appreciated.

What was the "surgery of a neurologist" that you had done?
May you find comfort and ease.
Chris

Jump to this post


Replies to "Good morning. Thanks for filling me in. I have a couple more thoughts....(which is unusual in..."

@artscaping

So, has giving up sugar, coffee and alcohol helped?

Thanks for your great reply. Surgery just means consultation room here in Australia

I changed the way I eat significantly, and this helped a lot with nerve pain (reduced it). I've not found any neurologist in Canada who has a tool to diagnose peripheral neuropathy. The diagnosis has always been a guess based on available data. this nerve-based disease is not a good one to deal with for a lifetime (which I have for at least 50 years). But eating well and keeping my stress level down helps a lot. I wish I had a miraculous cure I could share...🥲

Chris,
You still did not answer if giving up sugar was worth it/helpful in relieving any pain or discomfort.

Like Helpful Hug
1 Reaction
1 reply