Hi! I'm sorry you're struggling to eat! 50lbs. is a lot! Is it the pain in your mouth keeping you from eating? My mouth is raw with a few lesions that won't go away. I'm down 35lbs. I also have not accepted taking oral Dexamethasone. I was diagnosed 5 most. ago although I was having symptoms in my esophagus thinking it was gastric reflux. Which medication are you considering? I feel like my general doctor is just throwing steroids at me! She's never seen this disease before and isn't familiar with treatment! I would love to talk to you. At times I feel so alone with it. My husband tries so hard to help. He worries about me and is concerned about my weight loss. I'm 63 yrs. old and live in WA. state. I'm also interested in hearing about the the treatment you receive. ❤️