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Net unknown cause of breathing problems

Neuroendocrine Tumors (NETs) | Last Active: May 20, 2023 | Replies (16)
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@ce1b

Hi Californiazebra,

My NETs is a stage 3 atypical large cell considered to be a fast growing type of NETs. So far my treatments have reduced my tumor sizes by half. That was the positive results of the treatments to date. I'm looking forward to another positive result on this next PETscan as well. Hoping the treatments keep the spread of the tumors in check.
I've lead a healthy life up to the cancer diagnosis so my body is in good shape to take what ever is next. However the treatments have been taking its toll on my health. For me one of the impacts have been the change in my daily routines. Appointments and fatigue are some of the biggest impacts to my lifestyle. I've always led a busy life now I'm having to adjust to more downtime as the treatments schedules are reduced.
I see some new hobbies on my horizon as I progress in this NETs journey.

Kindest Regards
Ceb1

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Replies to "Hi Californiazebra, My NETs is a stage 3 atypical large cell considered to be a fast..."
peggymariejackson | @peggymariejackson | May 19, 2023

God Bless everyone as we go through this journey together.I am moving closer to my son and my oncologist.I pray good things keep a positive outcome for all of Us.❤️❤️❤️❤️❤️🙏🙏🙏🙏

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Zebra | @californiazebra | May 19, 2023

Hi @ce1b

Sorry to hear you have the atypical type. I feel lucky to have typical since it's slow growing. It sounds like your treatments have been effective though so that's great news!!! Very encouraging! Your healthy lifestyle and upbeat attitude are a huge plus.

I absolutely agree with you regarding appointments (so many) and fatigue changing your lifestyle, but I'm happy I can still enjoy life, just in shorter increments with more resting.

Blessings to you! Keep us posted. 🙂

CA Zebra

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