Neuropathy moving from feet to legs

Good morning @tessie63, and thank you for sharing more information about your life with neuropathy. Sorry is not a strong enough word for how I feel reading about the losses you have suffered. Do you have special tips and tricks you use to stay mentally healthy? Maybe a best friend, or group of friends. I have a meditation and mindfulness group of women who are loving, loyal, and supportive. We meet on Zoom every Thursday. And once a month we get together to celebrate and share.

I would like to introduce you to @johnbishop. He knows more about the numbness symptoms because he has no pain....just numbness. John, will you please share your experience? @tessie63, here is one of John's links that you can read while waiting for him to appear in person.
https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain
May you be free of suffering and the causes of suffering.
Chris

You mentioned a balm you are using. Could you please tell me where you get it and the name. I would like to see if it would work for me. Thanks

Good evening @mmksf, I see you have been dealing with some neuropathy symptoms for a while. At this point, you have no pain, just what I call tingle tangles. Unfortunately, my experience is quite similar. About 10 years ago, I had pines and needles in just the toes of my right foot and my fingers. They continued to spread until at this point, my feet are quite numb. In order to be able to drive a car, I have MFR (myofascial release) sessions twice a week. I have noticed that my legs are now impacted about halfway up to my knees. My fingers are quite tingly and I also tend to drop way too many things. Today it was the pantry container for pretzels and they spilled all over the floor.

Regarding opening jars .... I have seen some special tools that can help you. And, I am wondering if you have used Gabapentin and if that has helped put a lid on the pins and needles. Do you also notice an increase in the intensity of the feelings when the barometric pressure moves or decides to remain below 30? That can be accompanied by a sense of heaviness that goes above my knees.

The only area that sort of frightens me is my head. And I had that today. I know what it is and yet, it feels so uncomfortable that I worry about my brain.

Oh...I almost forgot, have you tried any topicals? I use a medical cannabis balm which does eradicate the feeling in my hands. I haven't found anything for my head. Have you tried cold or heat for momentary relief?

These symptoms seem to be somewhat common. Have you discussed your situation with a doctor? Do you have a neurologist or other type of specialist to help you?

Hopefully, other Connect members may be able to help both of us. Until then, there is comfort in not having the pain which can come with the pins and needles.

May you be safe, protected, and free of inner and outer harm.
Chris

Cris, can you give me the name of the balm you use. We have cannabis stores here in Canada so maybe I can get some there. Thanks

I would be interested in trying this cannabis balm as I also live in Canada. Never been into a store to inquire if they sell such. I have neuropathy in feet which has moved into legs. Feel numbness and cramping in balls of feet. Noticed twice yesterday my foot slipped off the gas pedal. Could be related. My neuropathy is related to 11 chemo treatments for pancreatic cancer. Whipple done September 2018. My hands get numb too but only after sleeping all night. Any suggestions would be appreciated. Thanks

Think you got the info for this balm on the above emails.
My chemo treatments caused this also and I only had three because I had ovarian cancer and the doctor felt he got it all but just wanted to be on the safe side. I so wish I could go back and change my decision to get the chemo but it’s too late for that. I only deal with the numbness and burning so I’m not sure this balm would help my hands. My feet both became dropped so I have that to deal with too. Anything is worth a try I guess. If you can get this balm in Canada please keep in touch and tell me if it works. All the best.

Good evening @mmksf, I see you have been dealing with some neuropathy symptoms for a while. At this point, you have no pain, just what I call tingle tangles. Unfortunately, my experience is quite similar. About 10 years ago, I had pines and needles in just the toes of my right foot and my fingers. They continued to spread until at this point, my feet are quite numb. In order to be able to drive a car, I have MFR (myofascial release) sessions twice a week. I have noticed that my legs are now impacted about halfway up to my knees. My fingers are quite tingly and I also tend to drop way too many things. Today it was the pantry container for pretzels and they spilled all over the floor.

Regarding opening jars .... I have seen some special tools that can help you. And, I am wondering if you have used Gabapentin and if that has helped put a lid on the pins and needles. Do you also notice an increase in the intensity of the feelings when the barometric pressure moves or decides to remain below 30? That can be accompanied by a sense of heaviness that goes above my knees.

The only area that sort of frightens me is my head. And I had that today. I know what it is and yet, it feels so uncomfortable that I worry about my brain.

Oh...I almost forgot, have you tried any topicals? I use a medical cannabis balm which does eradicate the feeling in my hands. I haven't found anything for my head. Have you tried cold or heat for momentary relief?

These symptoms seem to be somewhat common. Have you discussed your situation with a doctor? Do you have a neurologist or other type of specialist to help you?

Hopefully, other Connect members may be able to help both of us. Until then, there is comfort in not having the pain which can come with the pins and needles.

May you be safe, protected, and free of inner and outer harm.
Chris

What is the name of the balm?

Good evening @icelander19. I don't think I have welcomed you to Connect. Are you also part of the neuropathy group? There are so many of us. I have been told that because nerve regeneration takes such a long time, most folks will encounter some form of neuropathy along the way.

Papa and Barkley have served me well for many years. The company has consistently top-shelf products. Their customer service is great and they provide a great deal of updated and current information.

The balm can be found on their main website, http://www.papaandbarkley.com. There are two different "recipes". For chronic pain and other neuropathic irritation, choose 3:1 CBD/THC. For acute pain, choose 1:3 CBD/THC. Let me know if you have additional questions.

May you be free of suffering and the causes of suffering.
Chris