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DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?
Neuropathy | Last Active: Oct 11, 2023 | Replies (30)Comment receiving replies
I’m not sure what all those letters represent. My diagnosis was DADS-M, I think I’ve got the Igm too. I believe the M stands for MGUS which is a Monoclonal Gamopathy of Unspecified Significance. DAD-M appears to be the most tenacious of the family.
Blood doctor indicated a 1 in 5 chance of developing into Myeloma in the next 20 years. This disease I’ve come to discover is the precursor to Myeloma but may never get there I hope.
Replies to "I’m not sure what all those letters represent. My diagnosis was DADS-M, I think I’ve got..."
What I have read in the scant research papers on DADS-M is that Myeloma occurs 1 to 2% per year. Therefore it is unlikely that you will develop that although not completely impossible. My doctor also gave me the same numbers. I have had this illness for about 14 years and it has not progressed to myeloma. I hope this makes you feel better.
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Thanks for your response. MGUS was diagnosed and like you just needs to be monitored at this point. I was then diagnosed with DADS but didn’t realize at the time there are different versions of that. Have just completed my 2nd month of IVIG therapy with no noticeable change as yet. Will have to get more info about my DADS when I see neurologist next month. Suspect this all began with Pf Covid v’s but no confirmation of that as yet. I can say that before v’s I was perfectly healthy, active with no health issues. Now my life is upside down!
Wishing you all the best on this crazy journey!