1. < Neuropathy

MRI was useless detecting anything relevant for neuropathy in feet.

Posted by louise@lou @suzed, May 13, 2023

I was disgusted with results of MRI. The findings were slim: mild sesamoiditis, stress, arthritis, and artifact in little toe. That's all when I can barely walk? My sesamoid bone is hugely inflamed even with taking Pregabalin, and lidocaine patches don't help. My toes are numb (almost like frostbite) and I truly thought the MRI could pinpoint the damage as my last resort. My pain specialist hasn't been much help either in controlling or finding the root cause of peripheral neuropathy. Why is this SO difficult, and are there any caring and mindful doctors left who actually know what they're doing? Not in my case.

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tonyde | @tonyde | May 18, 2023
In reply to @suzed "Really appreciate your comments, and it wasn't a Neuro-MRI, just standard, but still thought it would..." + (show)
@suzed

Really appreciate your comments, and it wasn't a Neuro-MRI, just standard, but still thought it would detect damage. I don't have diabetes, and the pain specialist hasn't discovered root cause of peripheral neuropathy. But in 2021, an orthopedic surgeon performed revision surgery (for botched tailor's bunion) and it was after that, gradually over time, the peripheral neuropathy appeared which has halted 90% of my walking.
This pain specialist actually recommended an orthopedic surgeon which I thought was strange too. Passing the buck? I'm going to have him call me today for any other options. Very angry also about getting the run-around when my acute pain is so debilitating, I feel like a cripple when I used to be totally active, and enjoying life.

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Please talk to your primary care doctor about vitamin B injections. It's helped me quite a bit.
My pain would sometimes feel like a severe muscle cramp deep inside the bone and would last for hours. Vitamin B hasn't made the the pain away, only more tolerable. Vitamin B helps heal damaged muscles and nerves. Each injection helps me from one to three weeks with no side effects. Hope it also helps you.

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2 replies
jenatsky | @jenatsky | May 18, 2023
In reply to @wendyhobbie "That’s a great idea! Thank you. I just had cortisone shot in one heel. Not even..." + (show)
@wendyhobbie

That’s a great idea! Thank you. I just had cortisone shot in one heel. Not even close!

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The long term problem with cortisone type shots the more you get the more they deteriorate bone. For this reason they are limited. Not so with acupuncture

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louise@lou | @suzed | May 18, 2023
In reply to @tonyde "Please talk to your primary care doctor about vitamin B injections. It's helped me quite a..." + (show)
@tonyde

Please talk to your primary care doctor about vitamin B injections. It's helped me quite a bit.
My pain would sometimes feel like a severe muscle cramp deep inside the bone and would last for hours. Vitamin B hasn't made the the pain away, only more tolerable. Vitamin B helps heal damaged muscles and nerves. Each injection helps me from one to three weeks with no side effects. Hope it also helps you.

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Thanks Tony, never thought of Vitamin B injections. I'll check with my pain specialist about it. Appreciate your comments very much.

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1 reply
brushin | @brushin | May 18, 2023
In reply to @66vet "Neuropathy is also caused by M-Protein......MAGUS (monoclonal Gammopathy of Undetermined Significance ). I have this. Blood..." + (show)
@66vet

Neuropathy is also caused by M-Protein......MAGUS (monoclonal Gammopathy
of Undetermined Significance ). I have this. Blood work needed to find it.

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😭😭😭😭😭😭😭😭😭😭😭

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tonyde | @tonyde | May 18, 2023
In reply to @suzed "Thanks Tony, never thought of Vitamin B injections. I'll check with my pain specialist about it...." + (show)
@suzed

Thanks Tony, never thought of Vitamin B injections. I'll check with my pain specialist about it. Appreciate your comments very much.

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Please let me know if it helps and we can tell others. It took years before a doctor recommended it. I would encourage you to insist that your doctor try it by giving you a couple of injections. It has no known side effects and it's okay to have excessive amounts of vitamin B. I've been to pain doctors and several neurolgists, only one neurologist suggested vitamin B and that was pills, the pills did nothing. My primary care doctor told me the higher injected dose is needed. She was right. The official name is Cyanocobalamin 1,000 MCG/ML VL

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1 reply
louise@lou | @suzed | May 19, 2023
In reply to @tonyde "Please let me know if it helps and we can tell others. It took years before..." + (show)
@tonyde

Please let me know if it helps and we can tell others. It took years before a doctor recommended it. I would encourage you to insist that your doctor try it by giving you a couple of injections. It has no known side effects and it's okay to have excessive amounts of vitamin B. I've been to pain doctors and several neurolgists, only one neurologist suggested vitamin B and that was pills, the pills did nothing. My primary care doctor told me the higher injected dose is needed. She was right. The official name is Cyanocobalamin 1,000 MCG/ML VL

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Have yet to speak with pain specialist, but he's calling today so will definitely ask him about Vitamin B12 injections. Shall find out if he could prescribe a specific regime for me. Anything to reduce nerve damage would be extremely helpful.
Thanks again, Tony.

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1 reply
cher27 | @cher27 | May 19, 2023
In reply to @tonyde "Please talk to your primary care doctor about vitamin B injections. It's helped me quite a..." + (show)
@tonyde

Please talk to your primary care doctor about vitamin B injections. It's helped me quite a bit.
My pain would sometimes feel like a severe muscle cramp deep inside the bone and would last for hours. Vitamin B hasn't made the the pain away, only more tolerable. Vitamin B helps heal damaged muscles and nerves. Each injection helps me from one to three weeks with no side effects. Hope it also helps you.

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Hi. Are you talking about B12 injections? There are several B vitamins. I was told by my neurologist to avoid B6. Your symptoms sound exactly like mine. Thank you!

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1 reply
billwb | @billwb | May 19, 2023
In reply to @66vet "Neuropathy is also caused by M-Protein......MAGUS (monoclonal Gammopathy of Undetermined Significance ). I have this. Blood..." + (show)
@66vet

Neuropathy is also caused by M-Protein......MAGUS (monoclonal Gammopathy
of Undetermined Significance ). I have this. Blood work needed to find it.

Jump to this post

Yes, I have MGUS too, which came with the Covid vaccine. Have not had any advice on how to get rid of it.

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2 replies
billwb | @billwb | May 19, 2023
In reply to @wendyhobbie "PT is helping along with all day long mindfulness. Highest dose of Gabapentine, Tylenol, diet and..." + (show)
@wendyhobbie

PT is helping along with all day long mindfulness. Highest dose of Gabapentine, Tylenol, diet and elevated feet. I had spinal surgery (2 vertebrae caged) one month ago and up to 1hr on my feet with lots of walking now! 🙏

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Did you have spinal surgery to help fix your neuropathy? I was considering having an MRI on my spine to see if maybe I have something going on with the nerves from my spine.

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tonyde | @tonyde | May 19, 2023
In reply to @billwb "Yes, I have MGUS too, which came with the Covid vaccine. Have not had any advice..." + (show)
@billwb

Yes, I have MGUS too, which came with the Covid vaccine. Have not had any advice on how to get rid of it.

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B12 the generic name and my dosage is Cyanocobalamicn 1,000 MCG/ML VL. Typically lasts me 2 weeks, sometimes 3 weeks, sometimes 1 week. The pain can continue a few days after an injection.

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