← Return to Just diagnosed with pancreatic NET stage 1

Discussion

Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)

Comment receiving replies
@michellesimpson10

Hello all. I’m trying to play catch up. I want to say I’m sending love, hugs and prayers to all who are here and going on this journey together.💜💜💜💜
I am 9 days post op from NET 1 , distal pancreatectomy (30% removed) along with spleen removal. The spleen began to have a fit so my incision is larger than they had planned. All in all the surgery went very well. It’s hurts like hell and I was so happy for my anti nausea medication and pain meds. I was in the hospital for 6 days. I had my first post op visit and the oncologist had my pathology report. The NET was fully formed and the margins around it are clear. They do not see a need for follow up chemo or radiation. I will have scans and blood work often to make sure it hasn’t returned. I’m very early in the healing stages and have been able to start eating real food but nothing spicy 🌶️ or fried. They may have to put me in Creon but again it’s early to make that decision
My blood sugars have come down into the green zone and I have been able to cut down my insulin intake Again this is all early and my be temporary. But I am happy for each step forward and just trying to take it day by day.
Have an amazing day
Attached photo was going into surgery

Jump to this post


Replies to "Hello all. I’m trying to play catch up. I want to say I’m sending love, hugs..."

Congratulations! Now it is recovery time! Take it slow! You were lucky to have the tumour well defined and no mets! Eat small meals, nothing spicy or fried. I have been on Creon for a month ( you get used to take the pills at every meal).
Godspeed and hugs!💜💜💜

@michellesimpson10
What a wonderful report, Michelle! So glad that you posted this good news. The fact that you can reduce your insulin is great.

I agree with what @pavlina60 said, eat small, frequent meals that are easy to digest. Nothing greasy or heavy. After my second surgery, well-meaning friends brought me casseroles with a cream base (not a good choice) and salads (too much roughage). Those were not friendly foods based on my recent surgery of the digestive tract.

I look forward to hearing from you as you recover. Will you keep posting updates and asking questions?