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Liz (@lizzyeastwood)

Should I see a NET specialist?

Neuroendocrine Tumors (NETs) | Last Active: Jun 29 7:07am | Replies (25)

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Thank you very much for your reply. It has made me anxious that Mayo hasn’t suggested a Net specialist. I will definitely check out LACNETS. Blessing and good luck to you!

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Replies to "Thank you very much for your reply. It has made me anxious that Mayo hasn’t suggested..."

@lizzyeastwood — I didn't know you were going to Mayo. They do have a NETS program. There is a NETS specialist at Mayo that has videos on LACNETS.org his name is Thor Halfdanarson medical oncologist and pancreatic NETS is one of his specialties. Maybe your doctors are part of a NETS team or consulting with their NETS team and just haven't told you that? You might want to ask them.
Check out this website that lists the mayo doctors and their specialties. Look up your doctors to see if NETS is one of their specialties.
More here

Good luck!

Hi Liz, I thought I'd check in with you. Has it been determined that the tumor was a neuroendocrine tumor? How are you doing?

I also have a PNET and am being seen at the Mayo Clinic in Scottsdale/Phoenix. They have a very good NET program. Dr Sonbol is my doctor and my surgeon is Dr. Stucky who specializes in PNETs also. They are part of a multi-disciplanary team to diagnoses and treats PNETs. Good luck.