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Should I see a NET specialist?

Neuroendocrine Tumors (NETs) | Last Active: Dec 23, 2023 | Replies (33)
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@lizzyeastwood

Thank you very much for your reply. It has made me anxious that Mayo hasn’t suggested a Net specialist. I will definitely check out LACNETS. Blessing and good luck to you!

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Replies to "Thank you very much for your reply. It has made me anxious that Mayo hasn’t suggested..."
Zebra | @californiazebra | May 17, 2023

@lizzyeastwood -- I didn't know you were going to Mayo. They do have a NETS program. There is a NETS specialist at Mayo that has videos on LACNETS.org his name is Thor Halfdanarson medical oncologist and pancreatic NETS is one of his specialties. Maybe your doctors are part of a NETS team or consulting with their NETS team and just haven't told you that? You might want to ask them.
https://www.mayoclinic.org/diseases-conditions/neuroendocrine-tumors/doctors-departments/ddc-20354134
Check out this website that lists the mayo doctors and their specialties. Look up your doctors to see if NETS is one of their specialties.
https://www.carcinoid.org/?s=mayo+clinic
More here

Good luck!

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Colleen Young, Connect Director | @colleenyoung | May 28, 2023

Hi Liz, I thought I'd check in with you. Has it been determined that the tumor was a neuroendocrine tumor? How are you doing?

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Fabian Trujillo | @fabiant | Jun 17, 2023

I also have a PNET and am being seen at the Mayo Clinic in Scottsdale/Phoenix. They have a very good NET program. Dr Sonbol is my doctor and my surgeon is Dr. Stucky who specializes in PNETs also. They are part of a multi-disciplanary team to diagnoses and treats PNETs. Good luck.

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