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Is everyone here diagnosed with PMR seeing a rheumatologist?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 20, 2023 | Replies (103)
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@grammy82

I'm glad to hear you are having some improvement!! I've been on prednisone for three years now, and it certainly leaves its mark, but I'd never heard of it affecting the AT... It is an amazing medicine, and like most people...it is a trade-off, and we accept and tolerate the side effects.
I'm sure that is darn sore. Your PT sounds inciteful, and I'm guessing the PT is helping.
I started at 80 mg plus Actemra three years ago because I had lost sight in one eye, and the mission was to save the other. Mission accomplished with the help of a neuro-opthalmologist.
I'm now at three mg per day and grateful!! Keep in touch!💞

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Replies to "I'm glad to hear you are having some improvement!! I've been on prednisone for three years..."
reets70 | @reets70 | Jun 5, 2023

I also have AT, very badly in one foot, and very mildly in the other. It’s been five weeks and the swelling is finally going away. I feel like I’m between a rock and a hard place, not knowing which doctor should I see, rheumatologist, foot doctor or internist. They all tell me different things. This all started when my rheumatologist tapered the methylprednisolone from 6 to 4mg. I’m almost afraid to taper it again.

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