I also shown to have it by 3 day stool test sent to Mayo for results that showed the insufficiency. I went from 178 1/29/2020 to 153 in 7/5/2022 then to 145 by Oct 2022; HOWEVER the scales @ different Dr's offices were rarely the same and my own scale showed more accurate readings so I am sure my weight had been lower all along until I got a better/consistent scale.

i was placed on 12,000 Creon in Oct/Nov of 2022 but was not given or told about any specific 'diet,' so I ate anything I wanted and actually ate more than I ever ate in many months tho I did stick to grass feed beef burgers, chicken and many generally often recommended foods while still eating ice cream, chocolate (freak 4 it!) halfn'half in coffee, while taking choc cupcake for snacks 2-3 times a day or a few thin slices of Aldi's apple pie (apples seeming to have a settling effect on my digestion) both with small amt of 2% milk and/or even some thin slices of cheese Danish on some days.

When I went to Gastro on 1/4/2023 I weighed 147 - 147.6 and actually had gained 2 or so lbs so I asked if I could maybe cut back on the Creon from 4 to 3 times a day to see what would happen and he said 'Yes.'

I tried it and actually lost the 2 lbs gained plus a little more so I looked up a recommended Creon diet (of which there are many) and started it but I stayed @ 122.4-.6 since.

I am wondering if when my Dr prescribed the Creon he didn't mention any 'special diet' b/c he actually meant for me to NOT change eating habits to determine if the Creon would work with my 'normal' everyday diet? I saw his PR last week (who actually ran the whole program to find my problem last summer actually) and she was also a little vague and gave me a 'diet' sheet that was again different from any other I encountered in searching the web.

I must admit I had no appetite for many months prior to the fecal test results and I know that @ 80 yo I had to have lost a whole lot of muscle in the past 2 years, so I watch whether stools float or not and it seems that some style of eating (a lot of chicken turkey & pasta tho I don't know 'how much is too much' @ each sitting) has aided this noticeably and I do take fruit and veg (usually canned but not always) with each small normal 3 meals and some apple sauce with the Creon for the 4th dose B4 bed which they advised, but I am seriously now thinking of going back to eating everything I feel like eating and see if my weight starts to climb up past 142.6.

My situation still nags at me somewhat and I have gotten to a point where I don't really care what happens but decided to just 'experiment' with my 'diet' or ('non-diet'!) and keep a record of occurrences as I have for many years believed that it is sometimes worth letting your OWN BODY be your 'laboratory' and find out what does and doesn't work for YOU.

PLUS - many of these 'diets' themselves are quite different from each other to begin with 🙁 🙁

Blessings to all regardless ...

Nick

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