Hi Ingegerd,

I’ll answer your questions:
BP improved from large weight loss. Stable now.
Stricture was seen in the sigmoid colon and the surgeon “labored” over whether to remove it.
Linzess trial was not helpful.
I have not had sitz testing or anal manometry but surgeon felt that would not be helpful. Rectal exam and “squeeze” felt normal to her.
I’ve had luck with MOM and lactulose but as you know they are harsh and hard on the kidneys.
I’m currently using lactulose at 30 ml per day but it’s losing its effectiveness. I used Mirilax for many months before switching to lactulose. Never tried stimulants like biscodyl or senna.
Yes, I have heard of Motegrity.
The GI basically told me that there was nothing he could do for me after I informed him the Linzess was not helpful.
This problem has really had a hard affect on my life and my family. They don’t understand what has happened and why.
The CR surgeon basically told me that “it would be easier to treat me if I had colon cancer as I know what to do with that”
No kidding!
It’s a nightmare to say the least.
Perhaps wearing a bag would be a better option although that’s no easy path forward either. Nor an ileostomy.
I never thought my retirement would go this way however I have had 7 great years.
Let me know if I can help more.
I’ve read most of your posts here as well.
Scandinavians aren’t supposed to have to deal with this kind of stuff.
And you can’t do daily enemas either without major problems, but we are getting close to that.
The area of the remaining descending colon has spasms and when the gastrograffin enema was done I reviewed the scan with the radiologist and it was apparent that there were several areas where stool could meet resistance to flow.

So there it is!

gwix