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Newly diagnosed with thyroid cancer and have 2 main concerns
Thyroid Cancer | Last Active: Oct 24, 2023 | Replies (140)Comment receiving replies
Hello,
I was diagnosed with papillary thyroid cancer and had my whole thyroid removed, received radioactive iodine therapy, and am now taking 250mcg of levothyroxine for thyroid replacement therapy. I was diagnosed/ had thyroid surgically removed in February and feel like I am really tired. Find myself getting winded even just walking the mall. From what I am told this can persist up to two years and to keep pushing through to gain lost strength and stamina back up. My TSH levels dropped this month, hence the increase from 225mcg to 250mcg. The hardest part for me is waiting for the follow up scan to see if the radioactive iodine therapy did the job in killing the remnant cancer tissues or if I will need additional therapy to do the job. Best of luck on your journey.
Replies to "Hello, I was diagnosed with papillary thyroid cancer and had my whole thyroid removed, received radioactive..."
Hi @erickauch, the surgeon is also recommending a thyroidectomy for me. Do you mind sharing your symptoms prior to your diagnosis? What made the surgeon do a thyroidectomy as opposed to a lobectomy?
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I'm sorry you are going through that @erickauch . I am bracing myself for the possibility of a similar course of treatment. I know it can take a while to get the thyroid replacement dialed in -- and I really hope that happens sooner than later for you. I know a couple of very competitive endurance athletes who struggled with the same after thyroidectomy (and one who also had RAI) and it took a little time but they are back to competing and even winning. So there is hope!
Good luck with your follow up scan.