I have a Lung NET that has spread to one of my lymph nodes. Was told that mine also had poor receptors.
Diagnosis in Aug of 22. I too have shortness of breath, some mucus and now much fatigue.
Completed Radiation/chemotherapy treatments and am now on monthly Lanreotide injections. My next PETscan is scheduled for July.
I was told as this cancer progresses it will more likely than not end in brain tumors. While I’m not looking forward to treatments or disease progression I prefer to focus on my daily health and life. Making as many positive memories as possible just in case the gray matter and neurons get pushed out. 😉
I see this cancer as both a blessing and a curse.. I choose to focus on the blessings. I’ll let my care team take care of the rest.
It’s given me a lot of time for reflection. I have goods and bad days, but take them both in strides. My weekly support group meetings have been a source of inspiration. I hope everyone with this cancer can find the same. I always remind myself it’s a marathon not a sprint.
Next week I have signed up for some physical therapy to help in my fitness goals. So far when I spend one day on fitness it’s a two day recovery period for me. I’ll try to get that done to 1/1.. wish me luck..
Be as happy and healthy as you can and much blessings to all.