← Return to Looking to connect with people who have non-diabetic neuropathy

Discussion
Comment receiving replies
@papercutter

Hi, I have non-diabetic neuropathy. I guess it came on me slowly as I didn't recognize the symptoms. Mentioned it to my doctors about some of these strange symptoms but they didn't say anything to me about it or care. Some of the symptoms were: water drips on my legs, but no rain inside my house or not carrying anything with water, that was quite a few years
back. Then later symptoms were felt like I had pins in my slippers, used to take them
off and check if there were something poking my feet etc., couldn't figure it out, was always strange, that went on for years. Also, now that I think about it, thought I had athlete's foot,
but I didn't, I used to buy Athlete's foot cream but not having the issue! Also, always having really hot hot feet, but NOT having burning feet like I do now. Now I have the severe burning,
stabbing at times, pins & needles. Once in awhile I get a numb feeling, sometimes it feels like
there it like a sock or something on a few toes or something on them or a piece of cloth, weird.
It's all so strange, it's hell at times, I'm gonna be 73 the end of this month, have had a lot for the
past 52 years. When I was 21 I was in a traumatic t-bone car accident while grocery shopping for my mom as a passenger. The car I was in was a Toyota Corolla and a big Ford LTD hit us on the passenger side flipped us over and smashed us into a corner house. The fire dept. came and cut me out with the jaws of life as I was trapped in the car between the car & house. So I wound up with a fractured pelvis & sacroiliac, knees cut to the bone by the glove box, and internal injuries. No MRI's etc. back in 1971 as they didn't exist then , Current Medical Center Report: Spinal Stenosis, Spondylolisthesis at L4-L5 level, Cervical spinal stenosis, Cervical disc disease, Disorder of sacrum, Weakness of both hips, Sacroiliitis (CMS/HCC), Sprain of sacroiliac region,
2017 LS spine x-raySevere degenerative disease at L4-5 with disc space narrowing and
very early degenerative anterolisthesis. The L4-5 anterolisthesis corrects with extension, indicating instability. Minor degenerative narrowing of disc spaces above the L4-5 level, Mild to moderate degenerative central spinal stenosis at L2-3., 2 knee replacements. I'm sure all of this had contributed to my neuropathy. I have been tested for diabetes and I don't have it. I don't drink as my ex was an alcoholic and I detest alcohol, so that rules that out. I know for sure it was the accident that contributed to this problem. I just get frustrated that we all have to dig/look up info on our own instead of the doctors helping us more. Having to be our own "Advocate" for everything. Grrrrrr. I also have some other problems, (sorry to vent here). I have
pain on my right leg where I was hit, I have to sleep with an ice pack under my right thigh. I have to see a doctor for this problem, don't know what the issue is called. Have been checking online. It burns & hurts night & day. I also have venous insufficiency from the car accident, it has caused so many problems for me, throughout my whole body, I have arthritis everywhere, I hurt everywhere. I'm trying to recover from 2 major surgeries I just had in Jan & Feb, both on my left side, so I'm sorry if I'm complaining too much, please forgive me, still in bed a lot. That is all. Take care everyone. Much love, Nancy

Jump to this post


Replies to "Hi, I have non-diabetic neuropathy. I guess it came on me slowly as I didn't recognize..."

Hi Nancy @papercutter, Welcome to Connect. Venting helps, especially considering all that you have been through. You are right about being your own advocate. It took me awhile to learn that lesson. I'm sorry to hear about your neuropathy pain along with your other conditions along with going through recovery from 2 major surgeries...yikes!

If you are looking for reliable neuropathy treatment information, you might find the following sites helpful:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview.

Have your doctors provided any suggestions or treatments for your neuropathy symptoms?