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Dying from car accident can cause death more so this cancer
Neuroendocrine Tumors (NETs) | Last Active: May 17, 2023 | Replies (5)Comment receiving replies
The problem with blanket statements like your doctor told is that we all have different types of NET and in different stages of development.
I have an Insulinoma NET, pancreases to liver. I had no symptoms but when it was diagnosed in April of 2022 the tumors on my liver were 4 centimeters and to numerous to operate. By August they were 10+ centimeters.
The first doctor told me there was nothing that could be done and to make arrangements. The second doctor told me not to worry, liver failure was painless and would I like to participate in an end of life study? Third doctor started chemo immediately and tumors have been reduced back to 4 centimeters and I’m taking a monthly shot of Octreotide to maintain.
I’ve been criticized on this site for simply repeating what my doctors have told me.
In your case it may be true and there are many on this site that have maintained for years but don’t take it lightly there is no “cure”.
But, look both ways before you cross the street!
Best of luck
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Wow @lastround that's terrible what the first two doctors told you. Glad you saw a third! When my brother was diagnosed with stage 4 lung cancer (the common kind - not NETS -- even though he never smoked) they told him he had 3 months to live. Don't take treatment, go home and get your affairs in order. He was 45 and said, "That's not acceptable. I want the most aggressive treatment possible." He lived two more years on chemo and radiation and he was really advanced to begin with. He was a fighter.
I'm less concerned about the lung NETs because I also have unrelated metastatic breast cancer so that's my greater concern.
I hope you're feeling better and better and have some quality of life with the treatments you're on. Hugs!