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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
I am in Australia and I think we are a bit behind USA with wonderful institution like the Mayo clinic. I’m envious.
I have just been diagnosed with small fiber and now long fiber Neuropathy. I’m 66 and just can’t accept this leg weakness pain and fatigue.. I was an active bushwalker and now I have difficulty walking at all.
What are some of the tests available to you ..I am non diabetic alcoholic or smoker.. no genetic history no trauma or operations ..All bloods are normal. The only link could be a shingles vaccine …but no way of ever proving it . Nerve tests reveal short and long fiber ..The wait to see a neurologist is unbelievable. I emailed 5 specialists begging them to see me . One answered with a 3 month wait another with 9 month wait ..some have closed their books. Any info on tests available or cure would be so very much app
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Good evening @roslyn2314, Greetings......I just read your posts. Let me see if I understand what you are asking. You want to know about diagnostic tests for SFN because you are faced with a long wait for clinicians in Australia.
How was your SFN diagnosis made? Did you have the skin biopsy which is usually done around your ankles? That is the only definitive test I know of for SFN. Were you told the probable cause of your condition? For example, mine is the result of a long series of accidents and surgeries that created a traumatic form of neuropathy.
You also ask about a cure. Unfortunately, there is no cure for neuropathy of any kind at this time. The key is to find a way to ramp up the replacement of the nerves which no longer serve you. At this point, the process takes way too long even though our bodies work hard at it. So we are left with a strong need for something that will mask the pain caused by the lack of sufficient nerves.
I am fortunate to have found the support of medical cannabis. It doesn't wipe out the pain and insufficient functioning of muscles. It just keeps it under control so that we can continue to live and enjoy a reasonably stable existence
Can you purchase medical cannabis in your area?
May you be free of suffering and the causes of suffering.
Chris