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Still losing weight: Does timing of Creon help?

Pancreatic Cancer | Last Active: May 18, 2023 | Replies (18)
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@howleegirl

After reading on here what people are taking it does sound low....My worry is he is still losing weight!?!?!?!!? He was doing great for awhile then he lost 10lbs in a a-week! He is eating well. Had at PET scan done and it was clear. They said he is a "mystery" to them. I think they need to try to solve this mystery!!!!!! Could he be losing the weight because he's not getting enough enzymes??????

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Replies to "After reading on here what people are taking it does sound low....My worry is he is..."
gardenlady1116 | @gardenlady1116 | May 17, 2023

Yes. It took some help from the surgeon and the hepatobiliary dietician I see at MSKCC get me on the right track. I went from the initial of 24,000 which helped with symptoms but wasn't enough to stabilize weight. Currently taking 36,000 + 24,000 with each meal. The dosing is 500 to 2000 units per kilo body weight (2.2 kilos to lb body weight conversion. I have been able to stabilize my weight anyway.

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