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Trigeminal neuralgia: What helps stop the pain?

Brain & Nervous System | Last Active: Aug 21 7:08pm | Replies (127)

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@yayakiss

Strong electric surges throughout body when totally relaxed yet alert
You know those jumps when you’re falling asleep? Feels like you’re falling off a cliff? Imagine that but with intense electricity….. Not as bad as a taser (I know what that’s like, I have Trigeminal Neuralgia) but so intense it invokes an uncontrollable sense of fear/panic. It usually runs right up my spine. It occurs when I’m completely alert. If I’m in bed, laying on my left side, my right arm will fling itself away from my body (and vice versa on my right side). It gets so severe, I usually tuck my hands between my knees (but it can be so forceful sometimes that even this isn’t foolproof!).

For my personal health background and that of my family’s (that might be of any relevance), I have a sister with MS but my symptoms are different than what she’s experiencing. I have Trigeminal Neuralgia but it’s a rare form due to its severity. I even have simulated electrical pain in my head (w/o diagnosis) in addition to the TN. I’ve had more than 10 concussions and I had tbi as well (and possible “Boxer’s Brain”).

I know I’m a mess and it might just be nerve damage like the TN but I’d reeeeeally like to get someone’s input on this bc it’s driving me crazy. It’s affecting my sleep too!

Thanxx so much for taking the time to read this and respond, if you choose to do so. I appreciate it so much!

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Replies to "Strong electric surges throughout body when totally relaxed yet alert You know those jumps when you’re..."

Have you tried tizanidine to calm the twitching? It has really worked for me! I take 2 mg in the morning and 2 mg at night. I feel so much calmer and the electrical jolts are gone. Best wishes! I hope this works for you too!

Hello @yayakiss and welcome to Mayo Clinic Connect. You are not alone, which is why you will notice I have moved your post into an existing discussion which you can now find here:
- Trigeminal neuralgia: What helps stop the pain?: https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-5/

I did this to help connect you with other members, like @vickiekay, who has already joined you to share something she is doing and feels is working for her symptoms. Other members, such as @aderaw97 @jfn and @mattey741 have all recently shared in this discussion.

What, if anything, have you already tried?