My son who is in his early forties was diagnosed with NET in his pancreas. Surgery was scheduled to remove his whole pancreas gall bladder, spleen and part duodenum. It did not work out as tumor has engulfed his blood vessels and has spread to his nymph node. Only gall bladder was removed and bypass done.
One oncologist said it is stage three but tumor is of grade one from the sample taken. He would follow NCCN guideline to treat him with Everolimus in 6-8months. But success rate to shrink the tumor is only 10%. We were discouraged.
We heard of PRRT and wonder if this is a proper way to go. The doctor said his pNET is non functioning type according to his urine test result. The treatment will start around end of next month.
Any comment is greatly appreciated