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Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)

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@kellietg23

May 8 (last week), I had a distal pancreatectomy & splenectomy. There was a 1.1 cm neuroendocrine tumor in the central duct. The pancreas tail was atrophied. The pNET was benign as well as the 15 nodules around the spleen. The surgeon said I was lucky to have found it early (found incidentally). My take; although I am still a little shocked I had the procedure as I had ZERO symptoms, I believe if left to watch it would have only grown and likely become malignant. I am a 52 year old woman in decent shape and will have approximately
5 1/2 more weeks recovery. I’m doing ok, improving a little bit each day. Mainly I have to eat smaller meals because my stomach hurts if I eat too much and I get short of breath, more so towards the end of the day.

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Replies to "May 8 (last week), I had a distal pancreatectomy & splenectomy. There was a 1.1 cm..."

I’m glad you are doing better. It’s so fortunate that your NET was found early and able to be removed. 💜💜

Hello @kellietg23,

As it has been a while since you last posted, I was wondering how you are feeling since your surgery.

By now, you've probably followed up with your surgeon. I hope that went well. Are there any follow up treatments or scans planned?

I look forward to hearing from you again.