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@em2

Thankyou. I shall take your advice and find another way. I have had little help from my doctor or the rheumatologist..so I am going to find another. It took me so long to know what to do as I felt so debilitated by the steroids (all my teeth fell out and half of my hair but worse than that my imagination went I stopped dreaming and felt my character was changing) and my doc, who made me feel I was just needy and was not interested at all in helping me. My rheumatologist who I saw one time in eleven years (my doc refused to refer me) wanted me to stay on 3mg per day but I refused as there are so many side effects for me ....I was seriously going down. I am a bit wobbly too but I was worse when I was on steroids plus terrible brain fog. I feel clearer now but cannot work yet because of pain. Thank you so much I shall get an endocrinologist or rheumatologist to see about the pain. I could handle it better if the pain was not so bad. Thankyou xx

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Replies to "Thankyou. I shall take your advice and find another way. I have had little help from..."

I 'fired' a physician who 'was concerned about my dependence on prednisone.' I have an excellent rheumy, but this MD didn't get it!! I'd lost the sight in one eye and had no intention of losing the other if I had anything to say about it. Sometimes we have to take charge and be our own best advocates. I'm so glad you are going to seek informed😉specialists. Good for you and keep the great attitude!!💞