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Pseudomonas: What antibiotic treatment worked for you?
MAC & Bronchiectasis | Last Active: May 22, 2023 | Replies (27)Comment receiving replies
Has anyone been on azithromycin antibiotics 3 times a week for maintenance of pseudomonas & if so does it work & did you have any bad side effects? My pulmonologist wanted me to be on Tobramycin 3 months straight after I had already been using it for 28 days. I told him due to the side effects I preferred not to. After talking to the Infectious Disease dr he wants me to try the azithromycin antibiotic 3 times a week as maintenance for the pneumonia & pseudomonas I had late 2022 & again this year. I have bronchiectasis. Would appreciate any comments. Thank you!
Replies to "Has anyone been on azithromycin antibiotics 3 times a week for maintenance of pseudomonas & if..."
I have been in the standard 3 meds for three years to treat MAC. I was never told I should get my hearing tested for a baseline but have an appt now to see a doctor. I can tell that I have sustained a tremendous hearing loss as I continually have to ask my husband ‘what’ even though he is only a few feet from me. One serious side effect that is attributed to all three meds is severe dizziness - I have even passed out. This negatively affects my life more than any other side effects. I can’t drive for fear of causing a wreck. I would suggest googling Azithromycin and looking at side effects.
I am also on Azithromycin. No better, no worse & up to now no real side effects. Hoping it will actually "kick-in" sometime soon!
I take 3 a week. No better or worse. I do need to take a good probiotic or I have stomach cramps and some diarrhea.
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I am on that treatment. No side effects at all (hearing is fine no tintinitus). I was unable to take Tobi and was on Merem IV and now I'm on Sodium Chloride 3% plus the Azithro (250 mg) 3 times a week. (also Breo and Albuteral PRN) I have only been on this treatment since December but so far no downside. People on here say though that it can cause resistance (MAC etc.) but I guess that is a risk one has to decide to take. I haven't had a relapse but what means I don't know!