← Return to i have come off steroids after 11 years, am finding it very difficult

Discussion
Comment receiving replies
@grammy82

Though my problem is GCA I think the same factors apply when it comes to being off prednisone after long-term use. I would certainly seek the advice of an endocrinologist or your rheumatologist to get an alternate treatment for your continuing pain. I rather think that fatigue is always with us to varying degrees. You do very well with your walking and steps~! I bet I don't do 3000 per day ...any day.
I am on 3 mg per day now but experience issues with equilibrium as well...and I am a painter too. Such a wonderful escape for us. Could it be vertigo? I'm not a doc but would continue to look for answers since I don't believe you need to be in so much pain. I wish you the best.💞

Jump to this post


Replies to "Though my problem is GCA I think the same factors apply when it comes to being..."

Thankyou. I shall take your advice and find another way. I have had little help from my doctor or the rheumatologist..so I am going to find another. It took me so long to know what to do as I felt so debilitated by the steroids (all my teeth fell out and half of my hair but worse than that my imagination went I stopped dreaming and felt my character was changing) and my doc, who made me feel I was just needy and was not interested at all in helping me. My rheumatologist who I saw one time in eleven years (my doc refused to refer me) wanted me to stay on 3mg per day but I refused as there are so many side effects for me ....I was seriously going down. I am a bit wobbly too but I was worse when I was on steroids plus terrible brain fog. I feel clearer now but cannot work yet because of pain. Thank you so much I shall get an endocrinologist or rheumatologist to see about the pain. I could handle it better if the pain was not so bad. Thankyou xx