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Discussioni have come off steroids after 11 years, am finding it very difficult
Polymyalgia Rheumatica (PMR) | Last Active: May 27, 2023 | Replies (17)Comment receiving replies
Replies to "Though my problem is GCA I think the same factors apply when it comes to being..."
Thankyou. I shall take your advice and find another way. I have had little help from my doctor or the rheumatologist..so I am going to find another. It took me so long to know what to do as I felt so debilitated by the steroids (all my teeth fell out and half of my hair but worse than that my imagination went I stopped dreaming and felt my character was changing) and my doc, who made me feel I was just needy and was not interested at all in helping me. My rheumatologist who I saw one time in eleven years (my doc refused to refer me) wanted me to stay on 3mg per day but I refused as there are so many side effects for me ....I was seriously going down. I am a bit wobbly too but I was worse when I was on steroids plus terrible brain fog. I feel clearer now but cannot work yet because of pain. Thank you so much I shall get an endocrinologist or rheumatologist to see about the pain. I could handle it better if the pain was not so bad. Thankyou xx