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Looking to connect with people who have non-diabetic neuropathy

Neuropathy | Last Active: 16 minutes ago | Replies (916)
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@ssjohns

Hi Charlie,

Thank you for your reply. I am very curious about this device and have an appointment Thursday with my pain management doctor to discuss it. I’ve been taking gabapentin (900 mg per day) now for about three weeks and honestly it hasn’t helped that much.
May I ask how long you’ve had your SCS and the brand name and would you do it again given your experience? Also, how long have you had PN? I believe Abbott is the company that my doctor uses. I have already had two sets of steroid injections in the spine but the relief only lasted for about three weeks.

I am really trying to determine what PN stage I’m in. I am still able to walk with a Rollator, and use my wheelchair some of the time. I am very unstable and dizzy. I’m 68 so I’m not ready to be bedridden and confined to a wheelchair. This is all very new to me.

Thanks Charlie for this important information.

Sandra

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Replies to "Hi Charlie, Thank you for your reply. I am very curious about this device and have..."
charlie807 | @charlie807 | May 16, 2023

I'm also dizzy and a stable. I had the spinal stimulate SCS put in 2 years ago hoping that it would give me the relief the trial gave me. It did for the first year and a half. It can be adjusted and that is what I need to do. It just seems like every time I adjust the pain keeps getting ahead of it. Everyone is different, so it's worth a try for you. I try everything I can. I had surgery in 2010 for L-5 S-1 infusion and the doctor didn't check my nerves and left screws on my nerves. I didn't feel any different after surgery , plus my right leg was numb for a year afterwards. Awful!! He sent me for PT and Pain Clinic knowing exactly what was wrong. Then in 2014 went for revision of L5-S1 different doctors and he's was hoping to remove hardware and my nerves damage would reverse, but it different. So I've had neuropathy ,since 2010.
The company that works with my doctor was Medtronic. I hope you the best if you try it. Just remember it can be adjusted like I need anytime you need. My pain doctor can adjust which I forget. I'm 71 years old and I just forget to get it adjusted.
It's definitely worth the try. Good luck to you Charlie short for Charlotte.

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