@howleegirl , 5 creons might be a bit much, especially depending on the size (content) of the capsule. I started off with the 24000-unit capsules, but upped that to the larger 36000-unit ones. So 3 of those is a lot, unless it's a really big meal. Unfortunately for me, I live on a mostly meat diet, which means I really have to manage digesting fat carefully. I had to give up the heavy cream in my daily coffee, which has made things easier for me. Very fortunately, I haven't had any serious issues with weight management. For perspective, with heavy whipping cream in my coffee, I was getting about 400 calories from each cup, and drinking 2 or 3 per day.

@pendesk8 , I've talked to 3 centers of excellence plus one hometown oncologist, and none of them could recommend a study for me outside their own center/institution. https://pancan.org/ and another site linked here recently (can't find it now) can be very helpful in doing a nationwide search tailored to your specific cancer, stage, mutations, location, etc.

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