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Can anyone suggest any other medication besides Keppra for seizures?
Epilepsy & Seizures | Last Active: Jan 18 5:39am | Replies (120)Comment receiving replies
Hi @imstrongbecauseitistheonlychoice
I can understand very well your struggles.
I have met a mother whose son has epilepsy and other health issues and could control his seizures with Epidiolex after trying many AEDs. It would be a pleasure to introduce you both and put you in contact, but right now I believe it is not a good moment for her (her mother has been diagnosed with cancer and started chemo). As far as I know, Epidiolex has been approved by the FDA. I can not say much about the usage of medical cannabis in the US, as I live abroad.
As to support groups, I know that the Epilepsy Foundation offers in-person and also online support groups. I am part of two support groups, one in Washington and the other one in New York. We meet once a month online, but those groups also offer in-person meetings.
The NY Epilepsy Support Network: info@email.meetup.com; https://www.meetup.com/NY-Epilepsy-Support/events/293348696/
The Washington DC Metro Epilepsy
https://www.meetup.com/pt-BR/washington-dc-metro-epilepsy-meetup/
Kind regards,
Santosha
Replies to "Hi @imstrongbecauseitistheonlychoice I can understand very well your struggles. I have met a mother whose son..."
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Hi @ santosha
I unfortunately understand what that lady is going through on her mom having cancer and treatment because I lost my mom when she was 40 and I was 20 to lung, liver, and pancreatic cancer. I really sympathize with her on the hard toll it has on us as a caregiver/family member and still have to find time for taking care of ourselves . If you happen to talk to her and she is up for a new friend to have relatable conversations or just encourage each other and support each other emotionally, then privately message me or she can and I will exchange email and phone number. I just don't know anyone even a small bit close to what I am going through in my life. I will definitely be checking out those two support groups you shared, thanks!