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Any difficulty in diagnosis of PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jul 1, 2023 | Replies (51)
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@jennywren

For the majority of us it's the difficulty trying to get out of bed in the mornings. The pain is horrendous and stiffness throughout the day is awful. Yes, lots find that their CRP/ESR is normal. Mine was up to 115. Currently, mine is 3.6. I've chosen to use the Ultra Slow Taper as I was yoyoing far too much over the three and a half years since diagnosis. I chose to only taper by 0.5mg every six weeks. Sadly, three months after diagnosis for PMR GCA kicked in so upped my dose to 40mg where I've tried so many different tapers and finally hope I'm on the homeward journey. Still not holding my breath though.

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Replies to "For the majority of us it's the difficulty trying to get out of bed in the..."
Teri | @tsc | May 17, 2023

Don't despair@jennywren. I went undiagnosed with PMR for about nine ten months. Then symptoms changed and it was diagnosed as GCA with high inflammation markers and biopsy of my temporal artery. I was put on 40 mg prednisone with a taper of 5 mg every two weeks. This was for a year and a half. I've been off prednisone since October and now just have normal aches and pains associated with osteo arthritis, TMJ, a torn rotator cuff. Everyone's journey is different, but eventually there's light at the end of the tunnel. It's tough, but try to stay as upbeat as you can and be kind to yourself.

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