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What helped you make treatment decisions following DCIS lumpectomy?
Breast Cancer | Last Active: Mar 18 8:02am | Replies (119)Comment receiving replies
My biggest concern is also that the cancer was in my left nipple and my heart is on the left where radiation will be targeting. The whole cancer treatment regime/protocol is so barbaric I don’t even want to think about it anymore. All we can do is TRUST, think positive and wait and see. Hopefully someday people who have cancer will have more humane treatment options.
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I also had DCIS on my left breast, near the nipple. I mentioned my concern about my heart during the simulation for radiation. I asked if I could see the results of the simulation scans, and to see where my heart was in relation to the radiation. The doctor showed me how taking a deep breath during radiation physically lowers the heart in your body, then showed me where exactly the radiation is hitting my body and how my heart is not in range. It was super comforting to see that data.
What I’ve learned along my journey is that it’s really important to keep asking questions, raise concerns, ask for explanations, and ask to see the data. I just keep saying: “I’m concerned about…”. or “I’m curious to understand” or “I have another question” - and so far my doctor and care team have been great about providing answers and information.