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Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Neuroendocrine Tumors (NETs) | Last Active: Feb 26 7:54pm | Replies (77)Comment receiving replies
If it were me, I would ask the doctor (through a phone call or by email in the patient portal) for a referral to a registered dietician. I'm sure that John Hopkins has many registered dieticians on staff. Sometimes, you need to specifically request a referral in order to get what you need.
It is important for all of us to be proactive in managing our health needs. Will you let me know how that works out for you?
Replies to "@mbg20 If it were me, I would ask the doctor (through a phone call or by..."
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I agree. Im 55yrs old. I was 185lbs when i started my once a month Lanreotide injection 2/15/23. 3wks ago i had emergency surgery removing part of my SI and the primary NET in my SI b/c of a blockage. I was down to 167lbs 7days ago. I met with a dietitian that specializes in oncology. Im now 172lbs and eating more calories and things i didnt know i could eat a week ago. I feel better eating more variety including lowfat meat like chicken and turkey (not red meat). I was only eating fish and vegan, and soft low sugar foods as i was overly worried about if i could process with NETs in my liver as well. Good luck.🙏