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Mastectomy instead of lumpectomy

Breast Cancer | Last Active: Oct 24, 2023 | Replies (32)

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@eurojones2

First, good luck to you on your journey. I was diagnosed with triple negative breast cancer on 9/20/22. I went to the Breast Clinic at the Mayo in Jacksonville. My oncologist began chemo on 10/13/22. My tumor was 3.9 cm, almost 4, stage 2. It has not spread to the lymph nodes. I finished chemo on 2/16/23 and had my nipple sparing, double mastectomy on 3/21/23 with reconstruction. At first the surgeon told me a lumpectomy was all I needed. I wanted the double mastectomy from the start as my grandmother died of breast cancer at age 30. I also had a friend who had a lumpectomy with triple negative and she got breast cancer again 5 years later and had to go through chemo and get a double mastectomy anyway. In the meantime I tested positive for the BRCA1 gene which sealed the deal - double mastectomy it was and the surgeon agreed. No radiation needed. Also, my MRI showed I had HERS2 positive breast cancer in the center of my breast at not even stage 1 yet. That is all gone after the operation as well and no medications needed. At first I was going to go flat. I am 60 years old, so what's all the fuss? I met with the plastic surgeon to see what my options were for reconstruction. He reassured me he would go in after the breast surgeon and put tissue extenders in. A few months later after filling the tissue extender to the desired cup size, I will have another "Exchange" surgery where they will replace the tissue extenders with the normal implants. This is where I am at right now. I have total movement and feel so normal just 7 weeks after surgery.I will have my last surgery around August. I am happy I opted for the reconstruction because I feel normal as I look at myself. The scars are small and can barely be seen. I still have my nipples! My clothes fit and I feel like me. I am wearing a normal bathing suit. I hope this helps. I am athletic and don't have too much body fat on me so tissue transfer was not an option. Everybody is different, but your surgeons will go over what procedure is right for you. My advice to you is to research all your options. Talk to your surgeons. They will know what is best for you. Wishing you the best of luck and praying all goes well for you. I hope this helps.

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Replies to "First, good luck to you on your journey. I was diagnosed with triple negative breast cancer..."

Thank you so much, your info was massively helpful!
God Bless!

Thank you so much for sharing! I am 61 yo with HER2+ stage 2. Just met with an oncologist who recommended chemo / 6mo. I am waiting to see the surgeon and waiting for BRCA results. I also have an autoimmune disorder and so am very concerned with the chemo and steroid. I am still not clear as to why Docs just don't do a mastectomy. Do you wish you had gone straight to that vs after your chemo?
Best,
Cheryl