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@imstrongbecauseitistheonlychoice

Hi, my oldest son was on Keppra and was switched to lamotrigine (Lamictal) and it worked a lot better. My youngest was recently diagnosed 2 years ago roughly with a rare complex terminal epilepsy that is uncontrolled by AEDs. However, he was on Keppra and it didn't help him either and only made him extra irritable and angry like my oldest. They tried Briviact, oxcarbazepine (Trileptal), and topiramate (Topamax) which he had bad side affects to the Topamax. He is now on and it helps more than the others before control his seizures at least the Tonic Clonic seizures are better controlled for now plus he just had to have SEEG in January and then Right Temporal Lobectomy in April that has also helped the meds control those. He still has daily small focal seizures and occasional generalized convulsive seizures in his sleep still. He is currently on Oxtellar XR 1800mg/night dose , Vimpat 200mg/night dose, and the new one is Xcopri 150mg/night dose(must be 18 yrs or older only). My son just turned 18 in Septmeber so that is why we couldn't try it before recently. He has multiple types of seizures with first diagnosis but he has two diagnosis ~ 1.) Localization Related Focal Partial Idiopathic Epilepsy And Epileptic Syndromes With Seizures Of Localized Onset Intractable (sometimes with Status Epilepticus off and on), 2.) Epilepsy Seizure General Convulsive Intractable . He has epilepsy in all lobes but the main lobe that was the problem was the right temporal lobe. That is his story and journey so far so hopefully these different meds may work for you just look into them and their side effects and then talk to your doctor to see if any you are curious about would work for your epilepsy. I wish you the best of luck, as I know how hard it is and completely exhausting it is on a person to search for the right solution for your own body with all these different pharmaceuticals that sometimes have horrible side effects. Keep trying until you find the right solution for you! Good Luck !!

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Replies to "Hi, my oldest son was on Keppra and was switched to lamotrigine (Lamictal) and it worked..."

Have you tried fycompa yet? My husband takes 4mgs of it at night and is doing very well on it.