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← Return to Kevzara (sarilumab) to treat PMR
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Kevzara (sarilumab) to treat PMR
Polymyalgia Rheumatica (PMR) | Last Active: Aug 24 6:34am | Replies (162)Comment receiving replies
I'm glad to hear they are planning the biopsy, the loss is permanent, as I had to experience. It is best to know for sure because we certainly have to be our own advocates. I'd never even heard of GCA until it was too late. My best to you. I've gone from 80mg per day three years ago to 3mg and Actemra and feel good. I paint and have managed very well. You deal with it and try to do the best you can. So glad you are educating yourself. I was told I had the flu for nine months.💞
Replies to "I'm glad to hear they are planning the biopsy, the loss is permanent, as I had..."
Grammy82,
Thank you for your story and sharing. I am teaching myself watercolor when I can fit it in! Art is so therapeutic isn’t it? It puts you in a different space air another world. We all have something and I try to not dwell on it. I want to be more than my appointments or ailments . Definitely listen to what the Dr’s say but they are just so busy I make my own informed decisions. Sorry about your vision loss. Sounds like you rose above and are doing well. Big Hug
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Thank you for sharing! What a lot to endure for you. Glad you’re on the right medication and doing much better. Thanks so much for sharing your experience.