← Return to Starting Proton Treatments for Prostate Cancer: Any experiences?

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@gankster

@rockin2047 , I think I was fortunate because the only side effect I experienced during treatment was urgency to urinate, but as I recall it was only during the first couple of weeks of treatment (after that ... no urgency experienced). I experienced no bowel or rectum issues (I had SpaceOAR) and no ED issue. During each weekly consult with my oncologist, he seemed really pleased that I wasn't experiencing other common urinary difficulties (e.g., hesitation, dribbling, weak stream, incomplete bladder emptying), painful urination, or frequency of urinating. In speaking to a few other guys who were being treated during the same timeframe, it seems that their urinary difficulties were successfully treated with Flomax pills. Also, keep in mind that I didn't have SBRT so my experience (lower radiation doses over longer timeframe) may not be a good indicator for you.

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Replies to "@rockin2047 , I think I was fortunate because the only side effect I experienced during treatment..."

How are you now, @gankster ? I had SBRT photon + Orgovyx April 9-21 this year, and my experience isn't bad compared to yours (proton only treatment). But "still under observation" -- someone else started experiencing hot flashes after two months on Orgovyx, so I am on "wait & see." I am wondering if "proton only" (no ADT) absolutely worked for you. My oncologist we'll see if I can stop Orgovyx after 8 or 12 months; I prefer sooner, maybe 6?