← Return to Caregiver needed stem cell transplant while at Mayo in Rochester

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@loribmt

Hi @bevprescott, I want you to know you’re not alone. There are several of us in the forum whom have had stem cell transplants from donors. It’s called an allogenic transplant.
I’m going introduce you to @edb1123, @alive and @kt2013. The 4 of us have had transplants to keep us in remission from Acute Myeloid Leukemia. I’m not sure what you blood condition is, but if you need a transplant it’s because your current bone marrow is failing on some level to produce healthy blood cells. With a new immune system, via a donor’s stem cells, you’ll have a clean new system and you essentially get a second chance at life! ☺️ The other three members I’ve listed, along with myself…and others, will hand-hold you all the way through whenever you need a sounding board or an ear to listen. We’ve all been through this and some of us have walked the same path you are right on…there in Rochester!

We’re all at varying stages of success from 3 years to 10 years! While this is not an easy adventure, you’ll be in excellent hands with the team at Mayo and Station 94. Mayo-Rochester is my home away from home and these amazing doctors and nurses saved my life.

With your first appointment for the pre-transplant you’ll most likely be visiting the lab first thing in the morning. June 5th is a Monday. So you’ll want to get to the lab 1/2 hour early before your designated time especially if you have an appointment scheduled soon after that time. That is a really busy time of day.
So if your appointment is at 7:30 and your next one is at 8:15, don’t wait until that time to show up! Show up at 7 for the blood work. And just so you don’t panic there is always a built in 15 minutes of wiggle room before your next appt. If your time says 8 AM. You won’t be seen usually until 8:15.

Mayo runs like clockwork, smoothly and efficiently. They want you to be relaxed and comfortable. Everyone will do their utmost to make sure you have a good patient experience. You’re not a number there…despite having one. ☺️

There will be a lot of information coming your way that first day. You’ll probably get a disk with information about the transplant and the process. It will feel overwhelming but I think as soon as you meet your transplant doctor you’ll feel a little more at ease. This team is there to help you in any way they can.
Do you have any specific questions about the transplant itself?
Do I you have your patient portal set up?

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Replies to "Hi @bevprescott, I want you to know you’re not alone. There are several of us in..."

Thank you again. I had a gf step up to help me write things down. June 5th can't come soon enough than I'll know which direction Drs are going. This gf will be at Drs appts too with my sister & myself.