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Chronic painful Bone Marrow edema (BME) bilateral feet
Bones, Joints & Muscles | Last Active: 6 days ago | Replies (18)Comment receiving replies
Thank you Ginger.
Yes every day is a challenge as extreme depression/ anxiety have played a huge role now in the loss of my life.
Thank you for the insight. My insurance will not pay for UCDavis / Stanford / Ucsf however I have spent about 80k out of pocket for treatment for the accompanying CRPS /BME with consults and alternative / main stream treatments .
I have not looked into ucla and have not gone to Mayo or Cleveland but I have read their info. Thank you most for your support here!
Best to you,
Jules
Replies to "Thank you Ginger. Yes every day is a challenge as extreme depression/ anxiety have played a..."
Hi Jules,
I know this is from a couple years ago, but I was curious if you have found any treatment / relief. I have almost an identical story to you. Very active. Woke up with pain in my right foot. About 6 weeks later it spread to my left. I was eventually diagnosed with CRPS. I have bone marrow edema that is not resolving. Stress reactions / fractures as well I think due to the BME and fragile state of my feet. I’m being seen at UCSF, but they aren’t treating the BME. It has been 14 months and a ridiculous amount of doctors and appointments with no progress.
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Hi @julesj, you'll notice that I removed your personal phone number. Connect is a public forum. We recommend sharing personal contact information using the secure private message function. I might also add that by sharing here in the forum, you are connecting with several people where all can benefit from group support.
I also merged your discussion into an earlier discussion about bone marrow edema (BME) so that you can more easily connect with fellow members like @samiasibley @contactbrady @rileygirl96 and others.