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@frouke

@soupycampbell, I am truly motivated by what you said..it apparent that you know yourself well and what is best for you..I on the other hand tend to freeze up when I hear what some doctor says… I always had a strong voice but I’ve become more withdrawn and I don’t like it, thank you for the strength you show, it’s very inspiring for me and I truly wish only the best for you.

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Replies to "@soupycampbell, I am truly motivated by what you said..it apparent that you know yourself well and..."

Thank you so much. Not sure how brave I am but had this strong feeling that was the best thing to do. I’m pretty sure it’s the right call as the doc said I probably will have months to a year so I would rather be my healthier normal self then treatments that leave me sick etc when I have only that much time left. If it goes to another organ maybe quicker but as he said I’m in such good shape for my age I could last longer! That’s my hope. I wish you nothing but the best and will definitely pray for that! Only you know what you want so stand by your decisions. ❤️

Hi again. I just went back to your original post and see your in Canada. Me also, I’m in British Columbia close to the Washington border.

Hi @frouke : Thought I would give you an update. I talked to several cancer docs and they wanted me to get radiation. The last one at that time said I could do either 5 low dose or 10 high doses which he suggested the higher. He was leaving on a 2 mth sabbatical so I kinda rushed my answer and said I would do the 10. I thought about it and talked to my family Dr and said I was leaning toward getting the low dose so he suggested to try it and if there were bad side effects I could stop if that’s what I wanted. I did try that and started on Sept 8 and finished on the 14th. It did bother my esophagus but the clinic Dr suggested taking Pepcid A twice daily which pretty much did the trick. I lost some energy but went to California twice and just back from the last one which was one week and felt the best I’ve been. As usual I’ve just gone by my gut feeling! You never know it may have helped in slowing it down. Guess I’ll find that out probably I’m assuming in 3-4 months they’ll do another scan.
Hoping you’re doing well and to let you know I’m in White Rock so maybe you are too! If so let me know and I’ll buy you a coffee.
Joan