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Chronic painful Bone Marrow edema (BME) bilateral feet

Bones, Joints & Muscles | Last Active: Sep 9, 2023 | Replies (16)
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@julesj

I have had very painful BME in my R foot for 2.5 years. I had a "stressReaction" 12/20 after I woke up with severe pain in foot foot abruptly one AM. MRI showed diffuse BME throughout forefoot. I was in immobilized boot for 4 months and pain / BME has not resolved ever in 2.5 years. I went from
Full active life as personal trainer to sedentary disabled life.
I have been to every kind of specialist in Sacramento ,CA and no one has seen this prolonged BME AND no one knows how to treat it. No doctor or specialty knows a doctor to send me to. I have done day after day research and advocacy for myself and still Can not find treatmen or answers. I'm called UCSF ortho institute and they don't have treament nor information on where to get help.
Any help / info / experience in this regard would be greatly appreciated.

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Replies to "I have had very painful BME in my R foot for 2.5 years. I had a..."
Ginger, Volunteer Mentor | @gingerw | May 14, 2023

@julesj Welcome to Mayo Clinic Connect. I am sorry to hear you have had such a life style turn around the last couple of years. and loss of quality of life. It's really tough to step through this on a daily basis, isn't it?

I have linked a couple of great articles, one from WebMD, and one from Cleveland Clinic, for you to look at. Being in the Sacramento area, as you stated, have you considered UC Davis, a great teaching hospital in your area? I have a friend who accesses that facility, and is very happy with her care received there. https://health.ucdavis.edu/medicalcenter/ When I lived in Southern Califirnia, I used a facility that was connected to UCLA, and was considered a teaching facility for residents. I feel it made a difference in my level of care, having some sharp young doctors willing to look outside the boxes!

Bear in mind that having other health issues/concerns can combine to make a challenging case! I am here for support.
https://www.webmd.com/arthritis/bone-marrow-edema
https://my.clevelandclinic.org/health/diseases/24622-bone-marrow-edema
Ginger

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