← Return to Esophageal Lichen Planus
DiscussionComment receiving replies
Replies to "I have recently been diagnosed with oral , vulval and esophageal lichen planus. I use topical..."
Hi! I was diagnosed with Esophageal and oral lichen planus. It's now gone into the skin on my legs. Since I was diagnosed last December I have been using a Lidocaine topical med in my mouth and also a Dexamethasone mouth swish. The dexamethasone rinse can only be used for ten days infrequently. I don't swallow it! The lidocaine helps although it only numbs the tissue for about ten minutes. I have been offered steroidal (dexamethasone) pills. I have yet to take them by my choice. I use marijuana containing CBD and THC in the evenings and when I'm staying home. I only use Indica strain. This helps me more than anything!!! Eating is a big problem for me ! I have lost so much weight. Marijuana helps so I can eat a bit. It's very hard!
I took Prednisolone for many years and it did help, but as a steroid, it has some longterm side effects. For example, it made my teeth brittle and I lost several teeth during the time I was taking it. The only med I take now is Celcept (mycophenolate) which is the drug given to organ transplant patients to help them not reject the new organ. I don't know if it helps or not: I need to have an endoscopy with dilation every 4 months or I can't eat without choking. Methotrexate is a very strong medicine, I will be curious to learn if it helps you or not.