echogirl2019, Has no one told you that prednisone is the only reliable way to control PMR? Has no one told you that without prednisone, you run the very real risk of PMR's big, ugly sister, GCA blinding you permanently? I have had both (yes, both) conditions for almost 4 years and have been active on a British PMR/GCA forum most of that time (healthunlocked.com/pmrgcauk). That forum has over 18,000 members and dozens of members who, in ignorance or defiance of the facts, are now blind in one or both eyes. Please don't risk it, I'm not.

I suspect big pharma of some ugly things too, but please don't be the one who "cuts off his nose to spite his face".