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Need some insight. Cannot see neurologist for 7 months.
Brain & Nervous System | Last Active: May 16, 2023 | Replies (20)Comment receiving replies
Hello slyfry. I'm certainly not a doctor, but your symptoms sound a lot more like benign fasciculation syndrome than ALS. I have BFS as well - mine following a viral infection. Any trauma or stress to the body can cause it. From what I know of ALS, it typically starts in one area, and fasciculations aren't widespread all over the body, moving from place to place. When my BFS started, it was much worse than it is now, 2 years later. I had all kinds of strange sensations and numbness, primarily in my feet. Cramping and widespread fasciculation as well. Keep us posted on how you are doing. My suspicion is that you will continue to improve.
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I had no idea BFS could cause cramping. My twitching is mostly in the right leg still but it is appearing in the other leg frequently alongside areas in my torso like my abdomen and back somewhat frequently. My biggest concern isn’t even the twitching now it is the minor ache my right leg is feeling and bottom of foot pain/ache. I am hoping this does subside, just hard not knowing for sure. Thank you for replying as that does make me feel better there is another diagnosis this could be. I know ALS does not cause tingling or numbness and I’ve felt that on the occasion so I’m holding on that for hope.