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Kevzara (sarilumab) to treat PMR

Polymyalgia Rheumatica (PMR) | Last Active: Apr 4 7:55pm | Replies (156)

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@12345chris

Agree 100% and this drug is untested andb like playing Russian Rouletee with your body

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Replies to "Agree 100% and this drug is untested andb like playing Russian Rouletee with your body"

Yes, a great way to state this fact! Hang in there.

Just 10 days from reducing the prednisone 2.5 milligrams I have had a flare! Dr thinks the PMR might has progressed to GCA. I had the worst headache in both temples. Now planning on doing the biopsy as I would never want to risk vision loss. I knew ahead of time to watch carefully for headaches. Although the Rheumatologist never warned me. Anyway just sharing with you all cause being and staying informed is key along with being your own advocate. I feel great going back up to 15 mg on the Prednisone. It’s such a great drug. I’m feeling on top of the world after having one of the worst headache of my life. Just a day ago it was scary! I will let you know of any new med’s she might put me on. Of course I am going to research very thoroughly. Hang in there we can make it if we try! Staying positive and still working really is what keeps me going, trying to look beyond this.