Hi vtn
I am sorry that this has happened to you. I am glad you saw a NET surgeon. I would suggest you see a NET Oncologist. This will help you to make important decisions. I was 57 when I had a 6x7 mm tumor found mid pancreas in 2017. I have lots of underlying conditions and my GI Dr was all for getting it removed. Most pancreatic NETs are non-functional and due to the size won’t show up on MRI or CT’s. But you should have a Gallium 64 or CU64 scan just to be sure. NET cancers are cancerous, but slow growing. Ki67 1< is a slow growing cancer. PET scans should usually show these as well. Back to my story. I had a regular surgeon in 2017 and he prepped me for a Whipple and could not find the tumor and removed the neck of my pancreas. It was a tough recovery . The. In 2018 I had a PET and it was still there an growing. I waited until 2019 and went to surgeon and NET Oncologist at Mayo Jacksonville Dr.Starr and had the surgery to remove the remaining tail of the pancreas and they found another primary net on the head of the pancreas as well. I had a modified Whipple and I currently have no evidence of disease.
If you are wondering what is right, please get a second/third opinion to help you make this decision.
Also do your research.
Join Facebook group like NCAN, Dr Liu’s Zebras, A Neuroendocrine Cancer Community, Neuroendocrine Cancer Ronny Allen’s group. Also Carcinoid Cancer Foundation CCF. Wishing you the best and I am available, if you have any questions.