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MAC: Just how well do nebs work, anyway?

MAC & Bronchiectasis | Last Active: Feb 7 5:44pm | Replies (88)

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@sueinmn

Hello, and welcome to Mayo Connect. I hope you will find help by reading our many discussions, and asking questions about your own personal journey with MAC, which affects each of us differently.

Five years ago this month after a sharp-eyed radiologist saw something suspicious on an x-ray and sent me for a CT of my lungs. My "first stop" after diagnosis of "Bronchiectasis with possible MAI" was a pulmonologist, who did the testing to id both MAC and Pseudomonas. He treated me for over a year, getting the infections "under control" - but I still had positive cultures every 2 months, so I asked to see an Infectious disease doc, who changed up my meds.

The pulmo was competent, but apparently had an ego - when he saw that I had seen the ID doc, he "fired" me as his patient - even though I still have asthma and bronchiectasis. Fortunately, the ID doc referred me to a pulmo with whom he collaborates. The three of us are still a team on this journey even though I have been off the meds for over 3 years.

Who are you seeing now? Is your diagnosis recent?
Sue

So,

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Replies to "Hello, and welcome to Mayo Connect. I hope you will find help by reading our many..."

My journey started 2017
Since then I have had pulmonary nodules come and go. I had a portion of my lung removed, biopsies at the beginning No cancer
They keep saying I have sarcoidosis for lack of not knowing. Now my last CT scan was a bit worse and radiologist suggested infection like MAC
I am going to see my Pulmonologist in a few weeks and I was never worked up for infection and wondered if I should mention Infectious Disease Doctor because if there is something there, it’s getting worse. I have had at least 6 CT scans with no answer. Thanks for replying